There is nothing worse than feeling the excitement that everything is finally on track and getting better only to have it all come crashing down in an epic way. We work hard to get ourselves out of the rut we've been in only to have all that we've worked for threatened by the unexpected. But... Continue Reading →

Being Present

I haven't been as present as I should be. When I'm in a crap state, I have to find distractions to avoid taking that crap state out on others. I didn't want to be a burden and be a bitch. But not being present is kind of a bitch move, too. Too often I've heard... Continue Reading →

A Fuel Source

Ketones. I'm not going to wait until the end. Exogenous Ketones. It all started with exogenous ketones. Now, my first experience wasn't good and I even had to stop for a bit. Again, my body is super finicky, but I knew there was something to them. Watching people I've known for years finally see the... Continue Reading →

Learning What’s Important

I've been working on my down-in-the-dumps way of living since this thing took over my life. Obviously, as I learn more about Chiari Malformations, I realized so much of my issues are not completely unique even as different as we experience the condition. But not one individual has all the answers and I've been trying... Continue Reading →

One Last Place To Visit Before Surgery

The fight to not be overwhelmed by the risks of my decompression surgery for my Chiari Malformation has been one of the biggest mental battles of my life. It was a surgery that sent me down this road of struggle over the last year. Recently, I started seeing the decompression surgery as a godsend. Last... Continue Reading →

Writing With Purpose

07/26/2021 I lost all means of coherent communication. I used words like whatamacallit and thingy and even found myself calling things by other names. My brain just couldn't get out the words I wanted and I took way too long to comprehend the simplest of things. Um, I'm a writer. I'm a reader. I was... Continue Reading →

There is Light in the Well

July 24, 2021 Last weekend, I was the most productive I’d been in months. I found myself getting up earlier than I had without an alarm (unless you count the dog 😁). Steps were on point. I even went outside on the deck to get some steps in. I made lunch for the family (even... Continue Reading →

Advocate For Your Damn Health July 9, 2021 #mentalhealthcheck When someone tells you they finally know why you’re not quite right, there’s a moment of relief. You can fix the issue because you know what’s up. At least that’s how it’s supposed to work. You’re supposed to have all the answers now. “There’s not much we can do but... Continue Reading →

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